I love my friends and I want the best for them. I love being a mom and I want the world for my children. We have so many friends who have beautiful children that are not blessed with good health. It makes me sad. We know someone whos baby just had surgery at like 3 months for a heart condition. A small boy at our church was diagnosed with Moyamoya a very rare brain disorder.My bosses daughter has Ausbergers. We know someone who has a daughter with MD. Another just had a baby tested for Cistic Fibrosis. I can't even tell you the number of friends with Autistic children. My sister in law has a nephew that was born with Downs Syndrome. My brother's 17 year old best friend just got diagnosed with Hodgkins Lymphoma. Ack! The craziest part? So many of these children are under the age of five. When we got the call about my brother's friend I hung up and with tears in my eyes had a serious conversation with my husband. Do we have a right in this day and age to have our children grow up healthy? Is it to much to expect our kids to reach adulthood unscathed? Maybe because so much of this is fresh in my mind I am overreacting. I am a girl after all. I just really am a little shaken by the fact that so many of the sweet kids we know are starting out their lives with such a big issue over their heads. Childhood is about chasing butterflies and frogs and eating ice cream not doctors visits and therepy sessions.
I feel a little helpless sometimes. I want to help but don't know how. I wish I could start a foundation or fund research. Rainbows in Wichita recently filed bankruptcy. Can you believe it? A lot of my friends lost their kids school funding. Someday, when I win the lottery (haha) I am going to work on helping children with disabilities. I have this incredible pull towards these families. My thoughts and prayers go out to you. I love you and want you to know that there are people out there willing to fight the fight with you. I got your back ladies!
I seem to blog about this a lot. I promise I am not all sadness and gloom. It is just something I am very passionate about. Especially recently. I should really proofread this but I probably won't so I am sorry if it is rambling and scattered. Love you but I should get back to work.........
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1 comment:
Oh it does sound like you are having a rough go! Hugs to you and your loved ones..
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